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ANGINA AND SELF-HELP: BEGINNING A GROUP
The first step is to do some market research. Find out whether there will be enough interested people living in your area. This can be done by going along to your cardiologist’s outpatient clinic and asking the people who attend. Alternatively, you could ask your GP to put you in touch with other people on her/his list who have angina, or put a simple notice in the waiting room of your local surgery or in your local newspaper. Remember, at this stage you are just trying to find out how many people with angina want a group and how many would help to organize one.
Once you have ascertained there is a need for your group, then you can think about some practical arrangements. If you have not already done so, approach your cardiologist, discuss your ideas with her/him and solicit her/his support. More about this last point in the section on involving professionals on page 189.
Money
You will need some financial assistance for this project. Obviously, the more the better, but you can begin with just enough to pay for a room to be hired and to cover the costs of your attenders’ refreshments. Go to your local library and ask for the Charities’ Handbook. This is a list of all the registered charities in Britain, some of whom will donate small sums of money to getting a group started. (In other countries, ask your local library for a list of charities.)
Once you have a list of the appropriate charities, cost out your application for grant aid. Some useful things to consider are:
The cost of room per meeting,
Refreshments,
Publicity materials,
Organizers’ costs (telephone bills, stamps, letter paper, etc.),
Payment for speakers for the year,
Any necessary equipment purchase.
Most starter grants will cover these costs. However, you may wish to be a bit more ambitious and ask for writing materials, a typewriter, tape recorder or video recording machine to educate your participants. You may not get what you ask for but you may get some help towards the total cost.
It is advisable right from the very beginning to keep meticulous accounts. This will ensure that your sponsors are aware of where their money is being spent and it will help in the future running of the group and reapplication for grants.
Once you have been given a sum of money to start a group, you need to enlist the help of at least one other person and open an account to hold the money. Then begin to concentrate on advertising your group.
Going public
The first step is to let people know you exist. Contact local GPs, your cardiologist, local hospital coronary care units, other coronary support groups, put up notices in local shops and in your local newspaper. Maybe even contact local radio and/or television stations and ask if they are interested in doing an article on your group. When advertising yourself, bear in mind the following points:
Let people know the name of your group – avoid names such as ‘The Victims of . . .’, ‘. . . Sufferers’ or ‘. . . Cripples’. Consider – would you want to join a group which suggested hopelessness or inferiority? Be positive.
Give people the name of someone to contact and an address or telephone number – consider whether this contact person should be you. Bear in mind that you might be inundated with requests for information.
Make explicit the aim of your group – keep this simple, perhaps along the lines of ‘to offer support and education to people with angina about angina’.
Make it clear who the group is for, i.e. all people with heart disease? People with angina only? Families of people with angina?
Make your advertisement eye-catching, light and even amusing, but most of all make your main message clear and precise.
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