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WHAT IS IT LIKE TO HAVE AN EPILEPTIC SEIZURE?
‘I can’t describe my fits since I can’t remember them! Some people have a warning before an attack, but my only warning is that I go very vague, which is no help at all, since if you are vague then you do not realize it! The worst bit about having a fit is when you come round: I take ages to regain full consciousness, and it would be marvellous to have someone saying, “You have had a fit, therefore you are lying on the kitchen floor at Mrs Spinks’ house.” Most people when pressed will admit that I have had a fit (I usually have to ask the question) but they fail to tell me where I am. Since lam in such a confused state I need all the information I can get at this stage, together with loads of reassurance. (“I am here, I am not going away, you are going to be all right. “)’
From Epilepsy 78, British Epilepsy Association ? see appendix)
Many people who have epilepsy cannot actually tell you what they feel like during an attack, because they are either unconscious or confused during it, and have little or no memory of it afterwards. If they want to know what actually happens to them during the seizure itself they are dependent on what they are told by other people who have seen them have a seizure. And this is often a real worry.
?I used to worry dreadfully about people seeing me having a seizure. I thought I must look awful, I didn’t want anyone to see me like that. Then my doctor suggested to my parents that they take a video of me during an attack so that I could see what actually happened. I really didn’t want them to, and when they’d done it I refused to look at it for ages. But in the end I did and it wasn’t nearly as bad as I’d expected. I’m not sure quite what I’d imagined but really it was no big deal. After that I didn’t worry nearly so much about having a seizure in public.?
*9/193/2*

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