Celadrin


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SPINAL CORD INJURY: APPEARANCE AND SELF-IMAGE
Following spinal cord injury, the most likely physical change that is readily visible to others is in the way you move. Our image of ourselves, as well as other people’s perception of us, is shaped not only by facial features and physique but by expressions, gestures, and characteristic patterns of body movement. “The way you wear your hat, the way you sip your tea . . . they can’t take that away from me”- these old song lyrics express just how much our image of others, and even what we love or cherish about them, is related to movement. These changes in the capacity for movement or in the way of moving after the injury may affect not only how you appear to others but how you see yourself.
In some cases, such as in people with injuries high in the cervical spine, all movement below the neck is lost. Although facial expressions, voice quality, and unique speech patterns are preserved, people with high-level quadriplegia lose their characteristic hand gestures, body movements, and defining grace or clumsiness. They may feel that their head or mind is disconnected from their body, or feel trapped in their body, wanting to move but unable to do so. Or they may see their body as a burden to be dragged around. In some cases mobility may be largely restored, but uneven or awkward gait patterns look radically different from normal walking and draw attention to one’s altered function. In other cases, spasms can lead to uncontrolled shaking or jerking of the arms and legs, another highly visible alteration of normal movement.
Another physical change accompanying many spinal cord injuries is muscular atrophy. When muscles are not used, muscle mass decreases, resulting in the skinny appearance of normally large muscles such as the quadriceps (the front of the thigh). Weakened abdominal muscles can result in a flabby appearance even in a thin person. Contracted or flaccid muscles can create gnarly hands, lopsided trunks, or limp, lifeless-looking limbs.
The impact of these physical changes on overall appearance, as well as the difficulty of integrating them into one’s self-image, is compounded by the presence of “appendages,” the many assistive devices needed for living with a spinal cord injury. Braces, wheelchairs, crutches or canes, ventilators, and other adaptive devices are visible, tangible signs of disability. On the other hand, these assistive devices are essential to the injured person’s process of reintegration because they allow more varied motor activities (braces, crutches, or wheelchair) or self-care and feeding (adaptive splints or utensils). As their benefits become increasingly apparent and begin to outweigh concerns about appearance, these devices often become completely incorporated into one’s self-image, inseparable from one’s identity.
*53/156/5*

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