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IMAGE CHANGES IN PEOPLE WITH SPINAL CORD INJURY
Early in your recovery, you may see the changes in yourself as invalidating, unacceptable, or repulsive – you may, in effect, stigmatize yourself. Your early social encounters may reveal social strain, physical distance, intrusiveness, or outright prejudice. Physical and social barriers will loom large in your adjustment to living with a disability. You may begin to feel that you’re on the outside looking in; you’ve become one of “them.”
You may be shocked to realize that by virtue of your injury, you’ve joined a minority group. Like any marginalized group in society, people with spinal cord injuries are often denied access to many avenues of mainstream life, including acceptance in social and personal relationships. Even your own family members may initially look at you as alien. Their emotional acceptance may not come as quickly or completely as you’d like.
Many people find it helpful, particularly in the early stages of adaptation, to associate with other people who have similar injuries. The positive side of minority or “out-group” status is joining a new group of peers with whom you can identify and from whom you’ll get support and acceptance. Identifying yourself as part of a group with unique characteristics, needs, and accomplishments can become a source of pride and strength.
The growing disability rights movement generally subscribes to a minority group model for understanding the life experiences of people with disabilities. According to this model, the social and environmental barriers to integration in society have a greater impact on adjustment and successful living than do an individual’s psychological or medical factors. While disability per se is a physical or mental characteristic, handicap (disadvantage resulting in limitations in fulfilling one’s normal role) results from the interaction between a person and the environment. The crucial point is that the attitudes of other people and the physical/environmental barriers to mobility are problems separate from the disabled person’s physical or mental adjustment. This perspective can be psychologically liberating. It makes clear that your capacity for emotional or psychological strength is not the only relevant factor in adjustment. This eases the pressure you may have put on yourself and helps you direct more of your energy to solving the problems caused by external obstacles, whether physical, attitudinal, or economic.
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